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Monday, 03 December 2007 |
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EDM 397 - Care for Cystic Fibrosis patients 27.11.2007 McCarthy, Kerry
That this House welcomes the fact that average life expectancy for cystic fibrosis patients has increased to over 30 years and that a child born today with cystic fibrosis can expect to live into their late forties; expresses concern that, despite medical advances, evidence suggests that unacceptable variations in the standard of care, support and treatment still exist; believes that all patients should be entitled to the best care, support and treatment; welcomes the recommendations of the Back the Kid panel of expert clinicians on the future of cystic fibrosis care; and calls on the Government to conduct an audit of cystic fibrosis services in order to plan for high-quality services for all cystic fibrosis patients in the future. |